Collaborators
We’re proud to be a part of building, supporting and participating in the many initiatives and organizations that are bringing the global Data Dignity and Patient Advocacy movements together. The only chance we have to reshape how society views—and values—data, is if we all join together. It’s going to take all of us to get power back in the hands of each one of us. Together—we can do it!
Join Us.
If you’d like to know more about our work, or if you’d like to collaborate with us, contact us. We’d love to hear from you.
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A research institution that generates public, policy-relevant, actionable and accessible knowledge from the frontiers of tech and society, about our networked lives, to support the creation of a fair, free, and equitable society. Research themes surround Governance & Citizens, Futures of Workers, and the Data Economy.
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Mymee helps people Master their autoimmunity and reclaim their health. Mymee's first patent was filed in 2013, and its years of clinical research included over 1000 unique cases of autoimmunity across over 60 autoimmune diseases.
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Solve ME/CFS Initiative (Solve M.E.) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long COVID and other post-infection diseases.
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The Center for Applied Ethics and Values in Emerging Technologies works with students and faculty at the University of California, Santa Cruz, to provide a space where one can research and learn about topics relating to the program’s intent.
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Accelerating translational biomedical research by removing the barriers to patient participation. Through transparent communications, respectful patient support, and appropriate compensation, we keep patients engaged in the research process for a better patient experience and more impactful research biospecimens.
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Amplifying the voices of women and marginalized communities. We view documentary film making as a tool to educate students, organizations, the public, and law makers on social justice issues. Wail of a Tale is a 501(c)3 not for profit organization.
Join Us.
If you’d like to know more about our work, or if you’d like to collaborate with us, contact us . We’d love to hear from you.